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Introducing myself as Executive Director.
Today is my first day as Executive Director of Open Humans Foundation. I am honored and thrilled to be taking the helm! As Open Humans co-founder I’m a familiar face, but I’d like to take this...
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Genevieve now analyzes private data!
Genevieve Genome Report is a tool that takes genome, exome, or 23andMe data and produces a report comparing your genome to the “ClinVar” database – a public compilation of publish reports and...
View Article2018 Board of Directors candidates
The self-nomination period for our Board of Directors is over and I am happy to announce that 10 eligible candidates are on the ballot! At our annual meeting on March 26, two board-elected seats will...
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Announcing our new Directors for Open Humans Foundation!
With an enormous thank you to all our candidates – and the members that voted – I’m thrilled to share our three new members of the Board of Directors for Open Humans Foundation! Community Seat: Dana...
View ArticlePersonal Data Notebooks: Explore and analyze your data right in your browser
With Open Humans we are not only working to empower you to decide with whom to share your personal data – but also to explore your own data. With our latest project addition – the Personal Data...
View ArticleInviting candidates for our board
In upcoming weeks Open Humans Foundation will be electing three new members to our Board of Directors. Two seats are elected within the board — and one is a community seat chosen by Open Humans...
View Article2019 Board of Directors Candidates
The self-nomination period for our Board of Directors is over and we are excited to share this year’s candidates! We hope to begin the community seat election sometime next week, followed by a board...
View ArticleRemembering Steven Keating
This last weekend I was saddened to hear about the passing of one of our Board of Directors – Steven Keating, an inspiring activist and advocate for access to health data. Steven Keating passed away on...
View Article“Self research” panel video, join next on Mar 10!
We wanted to share our recording of an excellent a panel we had on Monday, and invite you to our next one on March 10. As part of our Keating Memorial Self Research activity, we discussed how to get...
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File upload &“data types”
Last week I finalized and publicly shared the File Uploader activity on Open Humans.1 This is a standard “activity” in Open Humans. Our structure is modular: in theory, anyone can use the APIs to...
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